Hello All – Its funny that I created this website 3 months ago and have drug my feet in posting anything.  If any of you know me then you actually know I tend to be an introvert (yeah I know that is crazy to think of) and tend to keep my struggles silent.  Like today for example – I may not leave the house all day….and if I do I’ll be in active wear but have totally not been active at all.  The Lord has definitely challenged me in this by giving our family one of the most wonderful challenges yet – a child with special needs.

I started this website as somewhat of an education or interest tool for those who want to know more about us and also what exactly Hattie is working through.  We currently still do not have a diagnosis and that is ok but we have a gene mutation that points us to one of the congenital myopathies.  Hattie began as just having hypotonia (there’s more info about that) but unlike some children who have a “benign” type of Hypotonia that resolves as they age or causes slight limitations – Hattie has progressed extremely slowly since 4 months of age.  Everyone says “dont say what she can’t do…say what she can!”   Well not to be the pessimistic person in the room but Hatties DO list is a short one but we are praising every little inch she makes.  With Hatties condition there are more unknowns than knowns and we get  ALOT of questions about that…But that’s ok because We love to share her story!  She can currently sit assisted in a Bumpo and has started on more solid foods.  She laughs and smiles (mostly at her dad and sisters).  She gets Physical Therapy 3x a week, Occupational Therapy 2x a week and speech therapy 1x a week. We recently had a followup appointment with Hatties Neurologist at Childrens in Birmingham and are excited to get reffered to the MDA clinic (Muscular Dystrophy Clinic of Alabama – no Hattie doesn’t have Muscular Dystrophy but they work with a wide variety of Neuromuscular disorders) and also are making a BIG Trip in January to Baltimore to the Kennedy Krieger Institute at John Hopkins to see another specialist in the Muscle Clinic.

Isla Kate is in school and loves her teachers….lol She’s an introvert after her mommas own heart but LOVES arts/crafts.  She also loves to help me bake in the kitchen and loves taking care of Hattie K.  She has started “her little horse” as a special needs sibling at Grace Rides, Inc.  www.gracerides.net

Laken Elaine has successfully started 3VPK at Crosspoint Academy this fall (cool because daddy works across the street) and is thriving.  She loves her classmates and teachers. She also does gymnastics, ballet, basketball….can you tell she is an active child.  She also rides horses and LOVES spending time up at the farm on her own John Deere.

 

This website is for friends, family, strangers who all want to know a little more about our lives and read a hopefully funny/encouraging blog about living life in the fast lane with the Jetton Crew. I promise not all my posts will be updates on our life…but then again it might.  My hopes is that I can use this as an outlet to get some of my struggles, strengths, joys and curiosities into the open air and out of my mind…so maybe I can sleep…BUT who really sleeps with 3 children 4 and under who are all strong willed, independent and VERY VERY talkative

 

 

James will be joining in on posts as well – because we are Team Jetton and Through ALL things OUR hands go up to the Heavens. Can’t wait to keep you posted. Blessings and Peace.